How Mom-Of-3, Mojisola Ogunlana Overcame So Many Challenges To Save Her Daughter With Treacher Collins Syndrome Is Truly A Miracle | WATCH

She narrated to the news outlet:

”I got married 19 years ago and in 2000, I had my daughter. I did not understand the nature of her disorder. We felt it was a small issue as we only noticed deformation around the ear.

This was three days after birth and we went to the Lagos University Teaching Hospital (LUTH). That was where we knew what would become of her in the near future.

The doctor told us what she would not be able to do in life, including talking. I was advised to learn sign language.

We were told she might not be able to walk; she would not be able to suckle because she didn’t have the cleft palate and the upper palate. Whatever she took came out of her nose as she was lactose-intolerant.

Having heard this, I got home and asked God what He said concerning the situation at hand and I heard vividly “the comfort you receive, comfort another person.” They were words of consolation. I am facing this challenge to encourage others.”

Mrs Ogunlana said that this went on for three years until they were referred to St. Nicholas Hospital, Lagos, and fortunately, she met a surgeon who tried to close the cleft but after nine days, it collapsed. They later heard about Modupe Ozolua, Founder of Bears Foundation.

After consultations in 2003 and with funds raised from the state government, another operation scheduled to hold, was withheld since the former was still fresh. She narrates further:

“We had raised N1.8 million for the operation and I agreed that the equipment be used for someone else. In 2007, they were able to perform the operation on her and it was successful. The cleft was closed. As we speak, she has gone through six major operations.”

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With the help of foreign clubs, with like minds, Mrs. Ogunlana, was able to carry on.

“I joined a club in the United Kingdom and I linked up with people in United States of America that have a similar syndrome. They sent some magazines to me. I went through them and I was adequately informed on how to overcome such challenges and the remedy.

There is a need to create this awareness among people. People need to be aware because some doctors don’t even know the name of the syndrome.

She has just sat for her West African School Certificate Examination (WASCE). Now I’m running a consultancy job in that area. I am educating those that have such children not to give up on them.

In a chat with 18-year-old cheerful Ifeoluwa, pictured above, she hopes to be a journalist. She likes every subject she was taught in school. According to her:

“I really don’t have friends, I have a few people, who associate with me and of course, I have my family.”

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Mrs. Ogunlana recently release a film on the rare condition to create awareness. She told Gospel Film News:

“1 in 50,000 is the true life story of my daughter. When we gave birth to her we got to know she has a syndrome called ‘Treacher Collins Syndrome’. This syndrome happens to a child out of 50,000.

There was a day my daughter came home and asked that ‘Mummy, is there nobody in Nigeria that has this kind of Syndrome, I want to meet the person, I want to share felling’ and I went to the internet to check, Lo and Behold, I couldn’t get any write up or anybody in Nigeria with that syndrome, though you can find it outside the country.

So, I made up my mind that since what the Lord told me when I had her was ‘the comfort you receive, comfort another person’, because I was asking God what he wanted to say concerning her case.

As a child of God when you have a situation, there is always something that God is saying, so, once you got to know what God is saying every other thing people are saying is noise.

Though Doctors told me so many thing; how she will not be able to hear, how I should not feed her with pepperish things until she is eighteen (18), how she will not be able to walk, they said so many things but I wanted to know what God was saying and the only thing God said was that The comfort which you have received, comfort another person.

When I now realised there is nobody with such in Nigeria and I know deep down that there will be some children with such, maybe they’ve been killed or they locked them up and I thought of creating awareness.”

Watch her share her testimony on INSPAYA

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