BIZARRE: Meet 8-Year-Old Boy Who Loses Skin Every Time He’s Touched
When Song Liuchen was born, he cried non-stop for 12 hours at the pain of being touched. Now 8 years old, he’s beating the odds while suffering from a rare condition that leaves his skin as fragile as a butterfly’s wing, Fox News reports.
Liuchen suffers from epidermolysis bullosa (EB), an extremely rare inherited condition, Central European News (CEN) reported. For EB children, every touch causes pain. Liuchen has a particularly rare form of EB that leaves his skin fragile and easily broken and it frequently flakes away. The condition was first bought into the public eye through a 2004 UK documentary, The Boy Whose Skin Fell Off, about the life and death of Jonny Kennedy.
Song’s parents were told upon his diagnosis as a newborn, that their son would not live long and were given his death certificate when they were sent away from the hospital. Specialists at the Zhengzhou hospital told them the condition was so rare, they did not even know how to treat it.
“To be honest most of the doctors we’ve spoken to have not been able to help, and we have tried numerous folk recipes and none of those help either,” his father, Song Zhongmin, 43, told CEN. “The only thing that has helped is lots of patience and care from my wife and myself. We have learned slowly to find ways of making his life easier, although he still has a great deal of pain and it is constant, when he sleeps, when he wakes, whatever he does.”
For Zhongmin and his wife, Wang Xiaying, 39, their son’s bravery has encouraged them to stay optimistic. Liuchen attends a regular school and is one of the top students in his second grade class.
Winter is the best season for the boy, while his condition worsens in the summer. His mother must change his bed sheets daily because of the blood and liquid from his wounds.
“His fingers are often stuck together, and he doesn’t even have any fingernails as they have fallen off,” Xiaying told CEN.
Unfortunately, his condition is worsening. The medicines and treatments have taken a toll on his health and he is no longer able to eat even rice.
“I try to be strong for his sake but sometimes I just have to find a quiet place and cry,” his mother told CEN. “It just gets all too much but I don’t want him to see me sad.”
God is your healer. BELIEVE …I feel sorry for the mother. aww
Hmmmmmmmm this is a serious issue oh. Nawao different kind of diseases. God help us all
Wierd things are really happening
Wonders!!! May God have mercy on this little boy.
Nawo ooo, it is well with dis genereation.
This really serious.
Oh! It’s a pity.
May God help him and give him a new skin.
Awww poor boy…May God heal you!
May obini igwe heal him
So sad for the mom, may God heal him.
Omg. I can’t imagine the pain the parents are going through as well
There is nothing God cannot do. Pray and get closer to God and he shall heal him
Oh gosh I almost cried. This is soo sad. I pray a cure is Found soon and God strengthen him
SMH l can jst imagine d pain this has caused d whole family
I don’t really know what this our world is turning into, bizarre stuffs happen a lot these days. I pray God send him a permanent healing.
God what a painful life the boy is living pls heal him
Epidermolysis bullosa! Wat a weird disease with a funny name! I feel for his parents, fear not by his stripes you are healed for his own glory..
OMG please help this poor boy, kia just imagining the pains he is going through.
Wow i cant begin to imagine what this little boy is going through. Lord have mercy and heal him. I wish there was no sickness in the world.
Is there anything too hard for God to do? The God of all flesh, He wil your son, by virtue of HOSTING OF THE ALMIGHTY IN MY LOCAL CHURCH (ASSEMBLIES OF GOD CHURCH) AT NUMBER 111 CLEGG STREET OJUELEGBA LAGOS STATE, i prophecy healing upon that boy in the name of JESUS CHRIST? Son receive your healing touch now from the crown of your head to the sole of your feet, be healed! Be healed!! Be healed!!! In JESUS name i prayed, AMEN!!!
Haa am speechless. May God not allow any sickness greater than us come close to our household
Awwww may God see him thru
Awww so sad .. such a lil boy
Incredibly mysterious.God is your strength
Touching,its d first case am hearing of.I feel for d parents.
Poor boy! May God hv mercy on us.
So horrible,its a pity
Na wah o.God help us
Sad…..imagine d mothers pain.I pray for them and use dis opportunity to thank God for my healthy kids.amen
Unbelievable! imagin de pain the little boy will be going through every day of his life. God have Mercy…
This is really heart breaking!
D Lord is ur strenght
The God dat gave naaman a fresh skin bless dis boy wf a fresh skin…mom n dad God x in control .Hes d only healer 2 dis n he’s gonna do it