Skin Tumours: If You Think You’ve Had a Hard Life, Wait Until You Read this Mum’s Story
In what seems to be an extreme case of Neurofibromatosis, a 38-year-old mother of two has been covered with painful tumours covering her entire face, with three giant growths swamping her right leg.
Charmaine Sahadeo from Chaguanas, Trinidad, has always had the condition but says the growths were largely unnoticeable until her second son Osiris, 15, was born, Dailymail reports.
After Osiris’ birth the number of tumours increased rapidly, and two surgeries have been unable to stop their growth.
The devoted mother has been left too scared to attend her sons’ school for any reason for fear they will be bullied. She is also self-conscious about going outside as children sometimes run away from her.
The sick mother is now seeking medical solution and is hoping someone from the UK ,US or Australia can help her.
”I have had the condition since birth, but it started getting a lot worse about 15 years ago. It was very small and did not show up much until after the birth of my second child.
Then after he was born it got a lot worse. It’s very painful, especially my leg. Right now when I squeeze the bump something like a large blackhead comes out.
In all I think I have thousands of lumps,” she said. ”On my face and head alone there are probably three thousand or more. It looks like my skin is a strange bubble wrap. It is the ones by my eyes that concern me the most.
The doctors say they could remove them to stop them blocking any vision but I am too afraid of the risk to my eyesight. I really worry something could go wrong,” she said.
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The woman who takes care of her two sons Caleb, 19 and Osiris, admitted that the tumours had made life terrible for her, as no one will hire her. She further disclosed that she was in an 18-year marriage, but she separated from her husband three years ago.
”One person even told me that if they were in my position they would kill themselves,” she said. ”But I’m a happy person. At the end of the day I do everything that a normal person does. How could I think about doing anything to harm myself?” she added.
Although she tries to remain in good spirits, she says people running away and making comments does get to her.
She has also been horrified by suggestions she should commit suicide.
“I get a lot of stares if I go out and a lot of people bring me down. I see myself as a beautiful person and I try not to let people affect me. I can’t let myself be affected by everyone’s opinions.
Some people do say some horrible things. Some people, especially children, get scared of me and run away. One person even told me that if they were in my position they would kill themselves. But I’m a happy person. At the end of the day I do everything that a normal person does. How could I think about doing anything to harm myself?
Some people with neurofibromatosis might not feel able to carry on but I do. I cannot work because nobody wants to hire me. And I cannot walk far or stand for a long time as the weight of the all the growths is so great and it gets painful. Financially it gets very difficult sometimes.
I have been out of a relationship for three years. It is very hard to find someone else. My sons are very loving children and I am very proud of them. But sometimes they are shy to bring friends home.
I don’t want everyone talking about me to them, and I don’t want people to say mean things to them, so I do not go to school functions and I always talk to teachers on the phone rather than go to see them. I do not go out if I do not have to, but I do go to the shops and to other places I need to visit.”
Charmaine feels she has run out of options for treatment in Trinidad and is turning abroad once again to try and find help.
Photo credit: Mercury Press & Media
I pray help comes for her soon.