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Celine Dion Details The Pain Of Having To Hide Her Battle With Stiff-Person Syndrome For 17 Years Before Revealing It To The Public

Celine Dion Details The Pain Of Having To Hide Her Battle With Stiff-Person Syndrome For 17 Years Before Revealing It To The Public

Celine Dion has opened up on her heartbreaking battle with the Stiff-Person syndrome she’s currently facing.

During a preview for an upcoming sit-down with Today Show host Hoda Kotb, the popular Canadian singer revealed that she secretly battled stiff person syndrome for 17 years before revealing it to the public.

The singer, 56, first revealed that she had been diagnosed with the rare autoimmune neurological disorder in 2022, but she has now shared that she’s been battling with the horrific condition in secrecy for nearly two decades before she told the world about it.

The hitmaker detailed the pain of having to hide the disorder from her supporters.

The widowed mum described keeping it from ‘the people who got her to where she was’ as a huge ‘burden,’ explaining that it felt like she had to act like a ‘hero’ while secretly feeling like her ‘body was leaving her.’

In a teaser for the upcoming chat, which will air in full today, Celine explained that when she first started to realize something was wrong, she didn’t ‘take the time’ to figure out what was going on.

She recalled struggling while her husband, René Angélil, battled his own slew of health woes; he passed away from throat cancer in 2016. She said:

“We did not know what was going on [with me]. I did not take the time… I should have stopped, took the time to figure it out. And like it wasn’t enough, my husband as well is fighting for his own life.”

SEE ALSO: Celine Dion’s Sister Spills On The Singer’s Health As She Battles Stiff Person Syndrome: ‘We Can’t Find Any Medicine That Works’ 

After his passing, Celine said she had a hard time balancing raising her kids, René-Charles, 23, and twins Nelson and Eddy, 13, with her career – all while keeping her deteriorating health a secret from the public.

She continued:

“I had to raise my kids, I had to hide, I had to try to be a hero – while feeling my body leaving me. [I was] holding on to my own dreams.”

But she said ‘lying’ eventually became ‘too much,’ adding, ‘Lying for me was… The burden was too much. Lying to the people who got me to where I am today, I could not do it anymore.’

“Not telling the truth was too much to carry,” host Hoda said, to which Celine replied, “I could not do this anymore.”

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Despite battling the disease for 17 years, Celine continued to perform up until 2022, when she shared her diagnosis with the world and canceled all upcoming shows.

During the interview, she further talked about her rare disorder, saying it felt like someone trying to strangle her. She also said the feeling of someone pushing on her throat made her voice sound off, and she even mimicked it by speaking in a high-pitched voice.

The mum of three said it all started in her throat and while she didn’t think it was a big deal, her hands and feet began cramping so badly she couldn’t unlock them. At one point, her muscle spasms were so intense she ended up with broken ribs.

ALSO SEE: ‘I Hope We’ll Find A Miracle’ -Celine Dion Gives Update On Her Battle With Incurable Neurological Condition 

The singer shared the diagnosis in 2022, and it eventually forced her to cancel her world tour. Her sister has also discussed her autoimmune disorder, mentioning how it sometimes leaves Celine totally immobilized.

She’s slowly making a comeback to the limelight, showing up at NHL games and even taking on a presenting role at the Grammys this year.

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