Meet Brave Boy Born With Brain Growing into His Nose

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An adorable little boy named Ollie Trezise whose brain grew inside his nose, has been described as the ‘real-life Pinocchio’ by his proud mum. He was born with a rare condition which caused his brain to grow through a crack in his skull into his nose, Daily Mail reports, making it stick out like the Disney character, Pinocchio.

As little Ollie grew, so did his nose, forcing the 21-month-old to undergo several painful operations to enable him to breathe. However his mother, 22-year-old Amy Poole who is proud of her brave little boy says strangers have been cruel to her son with some saying he is ‘ugly’ and ‘should never have been born’. She narrated saying,

“It’s absolutely heart-breaking. Once, a woman told me I should never have given birth to him. I nearly burst into tears. To me, Ollie is perfect. He is my little real-life Pinocchio and I couldn’t be prouder of him.”

The mum of two had first discovered that something was different about her second child at her 20-week scan, when doctors told her Ollie had unexpected soft tissue growing on his face. However, she was still shocked when she gave birth to him at Cardiff University Hospital in February 2014. Amy, who has since split from Ollie’s dad, said,

“When they gave me Ollie to hold, I was so surprised that I almost couldn’t speak.

He was so tiny, but there was this enormous golf-ball sized lump on his nose. At first I wasn’t sure how I would cope. But I knew that I would love him no matter what he looked like.”

A scan later confirmed that the lump was an encephalocele, which is a defect that causes the brain to grow through a hole in the skull, creating a protruding sac. In Ollie’s case the sac had grown on his nose, causing it to stick out. Over the next nine months, as Ollie’s body grew, so did his nose, just like Pinocchio. Doctors told a terrified Amy that they needed to operate on Ollie to open up his nasal passage and enable him to breathe. She said,

“I was so scared to let Ollie undergo such major surgery. He was so fragile, and I couldn’t bear the thought of losing him.
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But doctors explained that he was at risk of contracting an infection or even meningitis if he tripped and knocked his nose – so I agreed to the surgery.”

In November 2014, Ollie underwent the successful two-hour operation at Birmingham Children’s Hospital. The surgery involved cutting open Ollie’s skull to remove the excess sac of brain fluid and rebuild his nose. Amy described her boy afterwards,

“After the operation, Ollie had a huge zig-zag scar across his head. He must have been in so much pain, but he just kept smiling and laughing. His positivity made it so much easier for me.”

Now fully recovered, Ollie is a bubbly little boy who loves splashing in his paddling pool and playing with his four-year-old sister, Annabelle and Amy is now keen to spread awareness of the condition to prevent other children from being bullied.

“I don’t want other kids to face the nasty comments that Ollie has, and I think the best way to combat this is by educating people. I’d much prefer if people asked me why Ollie looks the way he does, rather than just telling me is ugly or pointing and staring.”